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" ... It would be lovely if we could simply make up medical traditions that somehow magically work and don't have any side effects. We can't. Nature is messy. The only thing that allows us to hold onto the reins at all is science. Remember when you had polio? No? Good. Thank a real scientist and doctor for inventing the vaccine. Does your kid have a tracheotomy scar from epiglottitis? No? Thank a public health official for following the evidence and the science and advising you give your child the Hib vaccine. ... "
" ... “We had to fight with the institutions to get the right amount of care at home”, Perniciaro says. Sirio’s bedroom was turned in a hospital facility. He needed nurses, all kinds of equipment and all day assistance. For two years they struggled, but “he gave signs that he was present and aware”. The doctors had said that there were no chances for communication, yet Sirio managed to overcome every challenge, to stand, to walk, and to talk in his own special way, as he can’t form words properly, his mouth being irrevocably open. “The tracheotomy is something we will probably never get past, but we have had answers that he wants to be a part of the world”, the mom recounts. “He’s a funny child, he makes fun of himself and others. He laughs like Santa Claus and has no filter, which gets embarrassing sometimes, like when someone slips on the street and he goes “Oh oh oh”. We discover a whole new world with him”. ... "