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" ... There were some consistent themes, particularly the frustration and anger of patients whose pain is inadequately treated. There is an urgent need for better ways of assessing and treating pain. With the lack of general awareness about SCD, even among health care workers, patients are incorrectly often labeled as drug-seeking, especially since the cause of their pain is invisible. Emergency Room staff must be educated in identifying and responding appropriately to pain. One patient advocate, Larry Allen (@sicklebear) commented that emergency room visits might spark a PTSD type response in patients, which is misinterpreted as anger. He observed, “When the one place you can go for help and to feel safe treats you like a criminal anyone would develop PTSD triggers.” ... "